August 2009


On August 6 a CT Scan was done on my brain. Before I could switch from Heparin (which requires hospitalization), it was important to know if I had any clots or bleeding in my brain. If so, changing to the longer lasting Lovenox would be too risky. Though this was part of preparing to be released from the hospital.

I was not prepared for what was found – 7 tumors in my brain.

After the shock of the news and all that it meant,  I wanted to know how  do we deal with this. I need chemo for all my other tumors and soon!

The plan is more radiation. 10 treatments for my brain. Chemo would need to wait two MORE weeks. The trial drug seems to have failed me. The standard of care now looked like the better option.

Some of the new tumors in my spine are suspected of the cause of some or most of pain in my back and abdomen. Radiation treatment will be concurrent with the remainder (5) treatments for my brain. It will not delay chemo. It starts on Saturday, August 26th.

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I have been ill, exhausted, or busy wrapping up the sale of my business. I was not able to find the physical or mental energy needed to write for some time. I do hope you have found Ken’s Blog. He keeps his current and writes from the heart, while I try to keep up on the basics. His is at kenwheatley.wordpress.com.

I am back in the hospital. I’v e been here since Monday, August 3. I came in for unbearable chest pain that I presumed was a PE. It was. I was put  on Heparin, a blood thinner. The pain from the clots lessened each day and are now mostly gone. But other abdominal and back pain have kept me in the hospital. The pain that remains is from my growing tumors.

I did get into the USC trial on July 29. That was after finishing radiation on the tumor blocking my airway, then a two-week waiting period from the radiation, and my July 24 – 28 hospital stay for pain. Because I was in the hospital, Dr B got me a waiver on the trial for this past week’s appt. until I could participate in the trial.

I’ve gotten though most of this illness without pain until this recent many weeks. I had been led to understand pain was manageable. But I am finding it to be a challenge for me and my doctors. I am tiring now and find it difficult to continue to write . I will try later in the day.